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Episode 12 – A Lawyer on “State-Sanctioned Rape” of Arkansas Midwifery Clients

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In this episode, Cristen speaks with Kesha Chiappinelli, an Arkansas lawyer who represents consumers working for better midwifery regulations.  Right now, for example, the law requires a number of vaginal exams for home birth midwifery clients–something Ms. Chiappinelli describes as “state-sanctioned rape.”  (The regulations are similar to what is described in Arizona: Mandatory Surgery or Forced Vaginal Exams.)

SEPT. 2017 CONSUMER ALERT: The Arkansas Department of Health will hold a public hearing on September 21, 2017, at 10:00 a.m. in the Auditorium of the Arkansas Department of Health, 4815 West Markham Street, Little Rock, AR in conformance with the Administrative Procedures Act, Ark. Code Ann. § 25-15-201 et seq. It is proposed to revise the Rules and Regulations Governing the Practice of Licensed Lay Midwifery in Arkansas pursuant to the Administrative Procedures Act as amended, and by authority of Ark. Code Ann. §§17-85-101 et seq. and Arkansas Code Ann. §§20-7-109.  A draft copy of the proposed revisions is here under the heading “Midwifery.” 

Interested members of the public can submit written comments no later than 8:00 am on September 21, 2017 via

Email at womenshealth@arkansas.gov

Or mail to:
Attn: Womens Health Section Chief
Arkansas Department of Health
4815 West Markham Street
Women’s Health Slot # 16


Ep. 14 – The Problem with Implied Consent | Lawyer Hermine Hayes-Klein

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Hermine Hayes-Klein

In this episode of Birth Allowed Radio, we talk about what it means to say no to a procedure in the delivery room, when and if implied consent overrides refusal, and who is the boss of your body. Spoiler alert: it’s you.

This podcast is an extension of a recent article I wrote. You can check it out here. http://birthmonopoly.com/impliedconsent/

My special guest is lawyer and birth rights advocate Hermine Hayes-Klein. http://www.hayeskleinlaw.com/

Let’s Talk About Consent

Implied consent is a concept that has become skewed, in all aspects of life on the sexual spectrum, including birth. Whether we are talking about date rapists or hospital administrators, there is a lot of misinformation about what implied consent actually means.

We are talking about the right to consent to or refuse treatments in the context of labor and delivery, as well as the absence of direct consent. This includes such things as medications, cutting or episiotomies, induction, and all other interventions and treatments, all of which can save lives when appropriate. But we also know that those interventions are massively overused. For instance, the rate of c-sections has risen from 5% nationally in the 70s, to 33% nationally. This hasn’t brought about improvements in outcomes.

In the system in which U.S. women are giving birth, the reality is that there is an inclination by providers to use these interventions because of perceptions of things like liability risk and other incentives that impact recommendations. Rates of surgical birth range from 7% to 70% in hospitals across the United States, and studies show that is not because patient health profiles vary that drastically.

Your right of informed consent and refusal is a critical tool to navigate the dysfunctions that occur.

Providers often think women do not have the right to refuse, and the pushback against refusal can range from pressuring to violence.  The fact is, even if the baby is going to die, the woman retains the legal right to make decisions. (Read more here about related ethics opinions from the American College of Obstetricians and Gynecologists.)

A great deal of the fear of the right of refusal is based on the idea that doctors can predict with accuracy the baby’s need for these interventions, yet those predictions often cannot be made with certainty.  These interventions are also not always evidence based, and the motivation to use them is often otherwise incentivized.

A hospital admission alone does not imply consent for all interventions, and implied consent should never override explicit non-consent.

There are gendered assumptions about female passivity and their own bodies that underlie the assumptions about consent. There is a mistrust of women contributing to this debate.

Implied consent is also used to make it harder to litigate date rape and marital rape cases. Nonconsented birth interventions bear similarities to sexual assault, legally, and with the experience of the victim.

Finding an advocate willing to pursue the case can also be challenging.

So What Needs to Change?

Training and education in our facilities needs to happen to close the gap between the ethical and legal principle that women have the right to refuse medically recommended treatment and the realities that women are experiencing on the ground in maternity care.

 

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Episode 15 – Marijuana and Pregnancy | Heather Thompson, PhD

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In this episode, we talk about the world of pregnancy, breastfeeding, and marijuana use. To help make sense of this topic – and sort the science from the pearl-clutching – I brought in a special guest: Heather Thompson, PhD. Heather not only discusses the research, but helps make it relevant to worried moms and birth workers.

Heather has a doctorate in molecular and cellular biology and has worked in clinical research in maternal and infant health for 25 years. She is now Deputy Director at the reproductive justice organization Elephant Circle. http://www.elephantcircle.net/

First, a note about the relevance of most drug research.

As a whole, drugs are not tested on pregnant women to see how they respond. Most drugs are tested on a “control” generally made up of white men, so those data can only ever represent the population of white men – we cannot always extrapolate drug effects onto other groups. The female metabolism, especially during pregnancy, differs greatly.

What are the benefits of marijuana use during pregnancy/post-partum?

During pregnancy, it is often used for morning sickness and extreme nausea (hyperemesis gravidarum), as well as migraines, pain, cancer, and other pre-existing health issues. Research indicates that about 2 to 4% of pregnant women in the U.S. use marijuana.

It’s important to remember that for people using marijuana as medicine–for example, to relieve nausea that is preventing intake of much-needed nutrition–there is an exchange of risks and benefits. Use of marijuana is not only about risk, but about benefit, and those risks and benefits must be weighed against the alternatives. It may be more acceptable to one mother to manage severe anxiety with careful, calculated use of marijuana instead of exposing the developing fetus to prescription drugs with known risks, or in lieu of stopping anxiety medications altogether during pregnancy.

What do the studies say?

There are three primary longitudinal studies on perinatal marijuana use, which report that the main potential adverse newborn outcomes associated with prenatal cannabis use are pre-term birth, low birth weight, and increased NICU admissions. It is important to note that marijuana alone does not cause lower birth weight or pre-term birth, especially with moderate use. Separating out the effects of other factors, like tobacco smoking and poverty, is challenging but critical to understanding the independent effects of marijuana use.

We have been studying marijuana for quite a long time from the perspective of looking for harm, but we haven’t shown that harm definitively. One of the primary authors on the Canadian longitudinal study, Dr. Peter Fried, says that despite decades of research, it has been found that the harms to babies are small, resolved in a few weeks or months, and that the child’s environment plays a larger role in development than marijuana itself.

Language matters. “Harm” has punitive connotations. “Expected outcomes” helps parents make reasoned decisions and brings less loaded language into the conversation.

What birth workers need to know.

Investigate your state’s mandatory reporting laws. Remember that you can add narrative to reports made to Child Protective Services; nurses’ commentary about patients holds a lot of weight. Any time you feel you must act as a mandatory reporter, keep in mind that use does not equal abuse. Prenatal providers need to help clients understand both the health and the legal risks (such as investigation by child welfare services) for a complete risk/benefit analysis.

Resources mentioned:

“Hard labour: the case for testing drugs on pregnant women” by Emily Anthes https://mosaicscience.com/story/pregnancy-testing-drugs

Check out Heather’s blog for more information on this topic. http://www.elephantcircle.com/circle

WANT TO LEARN MORE?

Go to www.birthmonopoly.com

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Review us on iTunes, SoundCloud, or wherever you listen to the podcast.

Businesses and organizations: Underwrite the show!  For more information, contact us at birthallowedradio@gmail.com

Listen on SoundCloud or iTunes

Birth Plans Are Never A Joke: Trust, Betrayal, and Misogyny in Maternity Care

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Facebook, Anonymous: My birth plan was mocked by the nurses at the station, who were taking bets as to how long it would take until I got a c/section.

Facebook, Anonymous: I went to a childbirth class given by the hospital I was giving birth in.  Nurse talked about and passed out a simple birth plan form to fill out. When I got into the labor room, I gave my nurse the paper. She said mockingly "A BIRTH PLAN? HA HA HA!". I was humiliated, and things got worse from there. Later, I saw my birth plan on the floor covered in dirty footprints. And that sums up how my birth went...

In the last week or so, I’ve seen a couple of long threads on social media begun by medical professionals making fun of birth plans… which is actually making fun of women with birth plans.  What comes up for me when I see this is bile in my throat. Yeah, I know that’s gross. ​But this mockery leaves me *almost* speechless​.

What is a birth plan? It’s a list of decisions and hopes about your birth. It is a written representation of how a woman has chosen to and hopes to have her baby, how she wants to be treated and how she wants her baby to be treated. The birth plan represents something universal–the human right to decide how to give birth–and something very personal at the same time–her decisions and hopes about a birth she and her baby will only experience once in a lifetime, for which there is no do-over.

One thing I think we often miss in this discussion, when we refer to birth plans as “preferences,” is that birth plans come from a place of trying to get better, safer care than what is routinely offered. Birth plans say “I would like to move around freely during birth” because women are often inhumanely restricted in labor, sometimes even physically restrained; we say “No episiotomy! Let me tear, please” because the majority of episiotomies are done on women who have not consented to being cut; we say, “If baby is healthy, please allow immediate skin-to-skin” because we and our babies are routinely traumatized by being separated from each other at birth.

Birth plans are women being smarter than hospitals when hospitals fail to follow humane, science-based practices. That they have to be written down and pre-approved by a doctor is evidence of how little women’s decisions in birth matter.

I have a visceral response to women’s birth plans being mocked, and at the bottom of that, for me, is a sense of bone-deep betrayal of women (and birthing people). It is putting all your hopes and dreams and *your medical decisions* in the hands of someone who is meant to care for you, and watching that person crumple it all up and throw it in the trash. It is being unavoidably vulnerable and having someone use that vulnerability against you… while you’re naked and in pain, during one of the most emotionally and physically important times of your whole life.

Facebook, Anonymous nurse: I also have a visceral reaction when I have heard mocking of patients birth plans.  As a labor nurse I used to get so psychically sick [sic] and angry with other nurses when they made off hand comments about how "the patient with the birth plan always ends up with an epidural and a c/s." I remember being in the morning shift Huddle and hearing the CHARGE nurse starting the mocking and joking about a particular patient and her birth plan, which allowed multiple nurses to add in their cruel comments.  I remember calling them out, and being ostracized for it. And I remember volunteering to be assigned to patients with birth plans so I could try to protect them from my coworkers.

Let’s not mistake this: it’s not only about a smirking behind the back; it translates to the care that is delivered. A nurse who is prejudiced against a person with a birth plan is NOT delivering the same care as a nurse who loves taking care of a person with a birth plan. Period.

There is an added layer of trauma to being betrayed by someone who is in a profession and a position of power where they are meant to care, comfort, protect, nurture, and support.

It is also misogynistic. I can’t say this enough. Choosing to laugh at the birth plan of a woman in your care is a decision to wield power over her body, and not in support of her, but in opposition to her. Just. Because. You. Can. It’s one of those things that I have a hard time explaining because it seems so self-evident. Yes, there is something misogynistic in wielding power over a vulnerable woman in a way you would never do if she were standing on her own two feet outside of the hospital.

Facebook, Anonymous: My first birth I handed over my birth plan the nurse literally LOL'd and said to the other nurse "Look.  First time mom with a birth plan *laughs*" I was openly disrespected.  I should have walked right out

Here’s the other reason it’s misogynistic: Only in Labor & Delivery is it even remotely acceptable to MAKE FUN of patients in this way. Can you imagine cancer doctors on a Twitter thread mocking patients for their whole-foods diets? Or cardiology nurses taking bets on which patients are going to fail at maintaining heart-healthy exercise routines? Dentists joking about how their patients flinch at oral injections? Sure, that *might* happen behind *some* closed doors, but it’s not the kind of thing you’ll see people chortling about in writing, in public, with their names attached.

Nope, only in maternity care would a medical professional find it acceptable to write openly on social media that a patient of theirs has a “ticket to the OR” because she had the nerve to write down her informed decisions about her care.

I see medical professionals complain: “Women don’t trust us.” “They come in defensive.” “I’m sick of the fear-mongering.” “This is painting everyone with the same brush!” Yes. When you betray someone at their most vulnerable, they lose trust and they become afraid and defensive. That is exactly what happens and you can expect it.

What I’d like to see instead of the jibes or the #notalldoctors or #notallnurses is, “I am horrified at my colleague’s words. This is not acceptable. I am a [nurse/doctor] and I have no tolerance for disrespect of patients.”

Maybe someday we won’t need birth plans because women won’t have to worry about being treated like troublemakers for having opinions about their own bodies. And, lest anyone call this “experience over outcome,” maybe someday we won’t need birth plans because women won’t have to be afraid that standard hospital care means 20-years-outdated, inhumane, unsafe practices.

Until that time, just like in every other area of life, where there is a deep and systemic problem, do this: Be transparent. Acknowledge the harm–even when it’s not yours. Make change. Every one of those steps is critical! *That* is how trust is rebuilt.

(This article was originally published as a Facebook post on the Birth Monopoly page.)

Version 2A former communications strategist at a top public affairs firm in Baltimore, Maryland, Cristen Pascucci is the founder of Birth Monopoly, host of Birth Allowed Radio, co-creator of the Exposing the Silence Project, and, from 2012 to 2016, vice president of the national consumer advocacy organization Improving Birth.  In that time, she has run an emergency hotline for women facing threats to their legal rights in childbirth, created a viral consumer campaign to “Break the Silence” on trauma and abuse in childbirth, and helped put obstetric violence and the maternity care crisis in national media.  Today, she is a leading voice for women giving birth, speaking around the country and consulting privately for consumers and professionals on issues related to birth rights and options. 

Consult with Cristen | Resources + more Articles

Free handouts + monthly-ish updates from Birth Monopoly: click here

Ep. 16 From Doula to Obstetric Violence Activist | Lindsay Askins

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In this episode of Birth Allowed Radio, we talk about obstetric violence, aggressive court orders, and the special trauma of early separation.

My special guest is Lindsay Askins, a birth doula and birth photographer, and my partner in Exposing the Silence, a photography and interview project about birth trauma and obstetric violence. www.exposingthesilenceproject.com/

> The journey from doula to obstetric violence activist.

While acting in the role of birth photographer, Lindsay watched a mother fight to see her newborn baby after it was immediately taken from her by the medical staff. “She never even looked at the baby’s face. They just took it. “

Recently, a doula client had been given a court order to comply with a caesarean, despite having no medical indications that it was necessary.

So many ethical and legal issues are raised when you witness birth. Sometimes mothers are not told anything about the procedures that are performed on them; informed consent is often never even an option.

> What does obstetric violence and birth trauma look like?

The common theme, when talking to women who have been subjected to obstetric violence, is the idea that they have no voice; they feel like no one is listening to them or including them in the discussion about their own birth.

Another prominent theme in birth trauma has to do with separation of moms and babies at birth. Mothers want to be next to their babies – it is instinctual. Suppression of that biological urge can create very real bonding trauma. When breeding horses, it is well known that you would never touch a foal for at least 15 minutes post birth, unless absolutely necessary, to allow for proper bonding. Yet we don’t allow that same opportunity to human mothers.

Lastly, there is a strong theme of objectification in these stories. Women feel like they are being acted upon, as if they are an inanimate object. They feel manhandled and as if things are happening to them without their knowledge or consent.

Resources mentioned:

Trauma and Recovery: The Aftermath of Violence–From Domestic Abuse to Political Terror by Judith L. Herman

WANT TO LEARN MORE?

Go to www.birthmonopoly.com

WANT TO CONNECT?

Email: birthallowedradio@gmail.com

Facebook: www.facebook.com/birthmonopoly

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WANT TO SUPPORT US?

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Businesses and organizations: Underwrite the show!  For more information, contact us at birthallowedradio@gmail.com

We would love to thank attorney Susan Jenkins for her support in this podcast. Susan is a national advocate for midwives and birth activists. Susan can be reached at (866) 686-1348.

 

Listen on SoundCloud or iTunes

International Midwives and Obstetricians Groups Plead for Clemency in Case of Persecuted Hungarian Midwife/OB Agnes Gereb

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It’s a defining feature of the birth monopoly: Hospitals and doctors using their power and influence over the legal system to make it difficult or impossible for providers to offer women the choice for supported childbirth outside the hospital.

Such is the case with the long-term legal prosecution of Agnes Gereb, the trailblazing Hungarian obstetrician who chose to become a midwife almost 20 years into her career so that she could support women on their own terms.  Dr. Gereb and her client Anna Ternovsky are featured in the 2012 film Freedom for Birth, which chronicled the cases against Ms. Gereb, and the lawsuit that Ms. Ternovsky brought before European Court of Human Rights.  That case was about the effect the legal climate in Hungary had on her reproductive right to choose the circumstances of her baby’s birth, in a country where (much like the U.S. and other parts of the world) home birth midwives are oppressed and marginalized and human rights abuses are routine in hospital maternity care.

Ms. Ternovsky won that lawsuit when the Court agreed that it is a human right to choose the circumstances of birth, including to choose home birth with a midwife, and that the state has an obligation state to support, rather than restrict, that right. Unfortunately, this ruling did not translate into a meaningful policy change in Hungary.  After spending three years on house arrest in her Budapest apartment, Dr. Gereb continues to be dragged through legal proceedings, and this month, was sentenced to two years in prison.

Below is a press release out today from Donal Kerry, Dr. Gereb’s lawyer and spokesman.  The letter he references is significant because it represents a joint plea by the global organizations representing both midwives (International Confederation of Midwives or ICM) and obstetricians/gynecologists (International Federation of Gynecology and Obstetrics or FIGO) to Hungarian President Janos Ader for clemency towards Dr. Gereb.  The letter is, also significantly, signed by the FIGO branch in Hungary.

Mr. Kelly notes: “The joint letter unequivocally makes the point that all midwives and doctors, including Dr. Gereb, have the right to be investigated by experts from their own profession (in an adverse birth incident [situation]) prior to any necessity of handling of the matter by police. This situation was not afforded to Dr. Gereb and has been a strong feature in her claim of having been treated unfairly in relation to the investigation and prosecution of criminal charges against her.”  This is a big deal, and something we’d love to see more of in other places.  (For more on the common but inappropriate convention of obstetric control over midwifery practice, see Why Are We Asking Doctors if Women Should Have Midwives?)

Sign the petition

Today’s press release is below and the letter from ICM/FIGO can be viewed here.

In addition to spokesperson Donal Kerry (donalkerry_at_hotmail.com), U.S. outlets can reach for comment lawyer and founder of Human Rights in Childbirth Hermine Hayes-Klein (hayesklein_at_gmail.com), who is familiar with the case.


Movement for Dignity of Birth and for Dr. Agnes Gereb
Budapest, Hungary

Press Release: January 30th, 2018.

ORGANISATIONS REPRESENTING 1.5 MILLION MIDWIVES AND DOCTORS WORLDWIDE, UNITE TO EXPRESS THEIR SUPPORT FOR Dr.AGNES GEREB, BIRTHING MOTHERS, MIDWIVES AND DOCTORS IN HUNGARY.

Today, the International Confederation of Midwives (ICM) and the International Federation of Gynaecology and Obstetrics (FIGO) wrote to Hungarian President Janos Ader concerning the situation of Dr. Gereb.

The two federations represent 1.5 million midwives and gynecologists/obstetricians worldwide.

Dr. Gereb, the Hungarian midwife and obstetrician is currently facing a 2 year prison sentence and will now turn to Hungarian President Janos Ader to seek a clemency in the matter.

When expressing their support for Dr. Gereb in her application for clemency both ICM and FIGO stated that “It is our shared belief that women around the world have the right to excellent midwifery and/or obstetric care and we encourage and celebrate midwives and obstetricians who respect a woman’s right to make informed choices and decisions about her care during childbirth”.

Both organisations, through their respective presidents, said they believed that “midwives and obstetricians always have the right to first be investigated by their peers; that is, a professional hearing by experts from their own profession of midwives or obstetricians, respectively. Such a professional hearing should always precede the potential necessity of handling by police and investigation by a criminal court”.

To this end, both ICM and FIGO expressed their willingness to “offer our respective technical expertise to assist the Republic of Hungary where necessary, by giving opinion and feedback on its newly developed guidelines for home-birthing and for the structure of its health professional disciplinary processes”.

In concluding, ICM and FIGO respectfully urged President Ader to “uphold these respective rights for all women, midwives and obstetricians in your country”.

A copy of the letter is attached.

For press enquiries contact:

Donal Kerry (English language)
email: donalkerry@hotmail.com
mob: +36 30 924 2190

Nagy Petra Júlia (Hungarian language)
email: nagy.petra.julia@gmail.com
mob: +36 20 824 7881

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Birth Trauma & Maternal Mental Health | Video

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As part of the free Mother May I Series, we are honored to present a webinar with Dr. Sayida Peprah, hosted by Cristen Pascucci and Birth Monopoly, on Birth Trauma & Maternal Mental Health.

Dr. Sayida Peprah

Dr. Sayida is both a licensed clinical psychologist and a birth doula. In addition to her clinical work, she is a presenter and consultant on topics of cultural competency, mental and maternal mental health. She serves as an instructor and consultant for the Association for Wholistic Maternal and Newborn Health. She is also a member of the Black Women Birthing Justice Collective, promoting research, education and community-based services to positively transform birthing experiences of women of color. Dr. Sayida currently serves on the California Maternal Quality Care Collaborative, Maternal Suicide Review Committee, working with other health care providers and researchers to identify key factors in preventing maternal suicide. Dr. Sayida is the mother of two daughters, born with midwives, one hospital, one at home.

Dr. Sayida can be reached at www.drsayidapeprah.com.

Birth Trauma & Maternal Mental Health

A few aspects we will cover include:
– What makes a birth traumatic?
– Who is more likely to have a traumatic birth?
– What does birth trauma look like in the family?
– What is the difference between birth trauma, postpartum depression, and PTSD?
– What can parents do after they’ve had a traumatic birth?

Mother May I? Consent begins at birth.

One-third of women describe their births as traumatic and many also say they were shamed and silenced afterwards when they tried to talk about it.  Mother May I, a new documentary film by Cristen Pascucci and the Birth Monopoly Foundation, looks at why and how this is so, primarily from the perspective of obstetric violence survivors.  This includes Caroline Malatesta, the Alabama woman who won a $16 million award in a groundbreaking lawsuit for fraud and negligence after she was assaulted and injured during birth.

Our “all or nothing” Kickstarter campaign runs until May 15.  We need your help to finish the film and get it out into the world!

Mother May I Series | Dr Sayida Peprah VIDEO from Cristen Pascucci on Vimeo.

“Women are the ONLY stakeholders who matter.” Cristen Pascucci’s Speech at 2018 Kentucky March for Moms

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This was a speech I wrote from the heart in one sitting, the morning of the March for Moms rally on May 6, 2018. These words came out of a growing sense of frustration that American leadership is so quick to blame women for what are actually systemic problems in maternity care, while virtually ignoring their own part in mass human rights violations that cause trauma and poor outcomes.  This was also in the middle of our Mother May I Kickstarter campaign, during which I was being inundated with stories of mistreatment and trauma.  Someone said later I sounded “tense” and I think that’s true.  Collaboration and positivity are good and necessary, but we must not lose our sense of urgency around what is truly a public health and human rights crisis.

March for Moms | Capitol building, Frankfort, Kentucky | May 6, 2018 | Video Transcript

My name is Cristen Pascucci. I’m the former vice president of Improving Birth and the founder of Birth Monopoly. I live in Lexington with my dear, sweet, smart six-year-old son Henry–right over there. Since he’s been born, that child has put up with his mother listening to thousands of women tell me their birth stories; he’s accompanied me all around the country educating people about their legal rights in birth and advocating for more respect for birthing people in every way that I can think of. He’s put up with my secondary trauma for doing this work–and that’s because anyone involved in maternal health as an advocate is dealing with the trauma of witnessing and hearing and responding to the effects of a system that injures and traumatizes and lets die the people within it at rates that are *crisis level*.

Right now, I’m making a documentary film called “Mother May I” about the obstetric violence and trauma in hospitals that puts so many women on the road to motherhood damaged and broken. [http://bit.ly/consentmovie]

How do we fix these big problems? Maternal mortality is just the tip of the iceberg. The prevalence of perinatal mood disorders is a symptom. These are *not inevitable outcomes*.

There’s a surprisingly simple big solution to this and it starts with rejecting the premise that the “experts in women’s health” are anyone other than women themselves. That the most important–the #1–stakeholder in maternal health disussions is anyone other than mothers.

Telling women not to get pregnant–as was suggested at the most recent annual meeting of the American OB/GYN group to help prevent maternal mortality–is one more indicator that our approach is coming from the wrong direction. Not getting pregnant doesn’t fix the sexist and racist structure of our system. It means that when a black or brown or indigenous woman does get pregnant or decides to have a baby, she’s stuck in a system that doesn’t understand how to keep her and her baby alive and is largely unwilling to allow her access to care that is provided with love, compassion, and cultural understanding of what she needs to give birth safely.

I don’t want to hear that this can’t be done. That we are too high-risk, too poor, too uneducated, too fat. There are people doing this work and they are already doing it better than American leadership thinks is possible. Look to Licensed Midwife Jennie Joseph in Florida, working with a high-risk population, saving lives just by basing her model of care on compassion. Look to Nicolle Gonzalez and the Changing Woman Initiative in New Mexico, centering her work in indigenous and Native American culture. These are just two examples of *leaders* who can do it–who are doing it–in their communities. We need to be looking to them and the other community leaders who center their work around treating women as whole people, hearts of their homes, and foundations for healthy families.

We need to stop looking to the same system and “experts” who got us to where we are today. This isn’t just about more diagnoses, more treatment, more expensive technology. It’s about prevention.

What if our system didn’t hurt and traumatize women in the first place? What if it gave women what they need and want? What if our system was re-centered around THAT and worked its way outwards?

The research is clear on this: Women want and need communication. They want and need to be included in decision-making and to make decisions. They want and need to feel safe and cared for. They want and need evidence-based options–options that are safer, healthier, and less traumatic. Options like birth in birth centers, birth at home, birth with midwives, birth in hospitals where we are not held to outdated, sexist protocols about how we are “allowed” to give birth–how much time we’re “allowed”–what position we’re “allowed” to be in–whether or not we’re “allowed” to walk around or eat or drink. Whether or not we are allowed to say “NO!” when it comes to our own bodies, our own babies, our own births.

If you hear nothing else I say today, I want you to hear this: It is time we stop characterizing what women say they want and need as wishes and desires and expectations to be managed and minimized. It is time we hear women’s wants and needs as MANDATES and recognize that they closely match what research and science tell us is best already: caring and communication to minimize trauma and its after-effects; birth in birth centers and at home and with midwives to allow for better health outcomes; mother-directed–not provider-directed–protocols. Birth on *our* terms and *our* timelines.

And last, we need to make clear that we value mothers as human beings with human rights FIRST. It is a fundamental human right to determine the circumstances of how you give birth–where, how, and with whom. Right now, we have tremendous interference with this human right in the form of overly restrictive midwifery regulation, hospital policies, and hospitals and doctors defending themselves in courtrooms all over the country with the claim that they have the authority to override a woman’s decisions at their discretion.

We have the majority of Kentucky hospitals “not allowing” women to birth a baby out of their own vaginas if they’ve had a previous Cesarean–and those same hospitals lobby in the state house to make sure those women don’t have the right at home, either. That’s true in Kentucky, in Alabama, in Maryland, and in many places all over the country.

In closing: Women know what women need. And by God, we know what our babies need. It is a matter of fundamental human rights and it’s common sense. We are not vessels. We are human beings with brains, decision-making capacity, and fundamental human rights. We are the ONLY stakeholders who matter in maternal health discussions. Listen to us! Let us lead. Do not tell us we are “not allowed.” We will show you how it’s done.

Thank you.


Ep. 17 – Birth, Death, and the Future of Midwifery | Karen Webster

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There have been a lot of changes to how midwives can practice in Maryland – what was once a felony is now a regulated practice. Yet, it isn’t necessarily easier for parents or midwives now that it’s “legal” to give birth at home with a professional midwife. In this episode of Birth Allowed Radio, we talk with a midwife who has been practicing for 38 years about what she has seen change, and what it means for healthy births moving forward.

My special guest is Karen Webster, of www.womanwisemidwife.com. Karen has been investigated and charged in Maryland, Delaware and Virginia for practicing midwifery–and she says she would do it all again! She puts herself on the line to help women give birth as they choose.

“I was illegal.”

From the 1980s until just recently, it was a felony to practice professional midwifery in Maryland. It is now legal now, but so restricted that it makes practice difficult.

“Not a week that goes by that I don’t have a mom say to me ‘they said that my baby might die if I don’t do this.'”

We have created two separate and often hostile systems. Midwifery respects the client’s right of refusal; they are the center of the care. It puts the onus on women to make decisions about their own care, without using fear or violent, disrespectful language.

Other countries are following our lead when it comes to birth, which is unfortunate, because we aren’t doing a great job. The medical community is starting to realize that we are in crisis and is trying really hard to humanize the doctor-patient relationship–that effort just hasn’t reached Labor & Delivery yet.

“We are terrified of birth and death because it is taken out of our everyday reality.”

Birth and death are so removed from our personal experience that we have given them both over to experts to manage for us at high cost. But that is changing.

“What I see coming is a time when what midwives did in the late 60s, early 70s–the renaissance of midwifery, the re-creation of who we were [as] community midwives–is going to happen again. Because the restrictions being imposed on midwives are not realistic for women.”

Resources mentioned:
Being Mortal, Atul Gawande, www.atulgawande.com/book/being-mortal/

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We would love to thank attorney Susan Jenkins for her support. Susan is a national advocate for midwives and birth activists. She can be reached at (866) 686-1348.

Ep. 18 – Doulas, Advocacy, and Oppressing Ourselves | Rebecca Dekker [Mother May I Series]

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MOTHER MAY I SERIES – bit.ly/consentmovie

Rebecca Dekker, a nurse, teacher, PhD researcher, and founder of Evidence Based Birth®, talks with us about the hierarchy of oppression that exists in maternity care, and how that oppression relates to birth (especially doula) work and advocacy.

You can learn more about Rebecca’s work at www.evidencebasedbirth.com.

The Hierarchy of Oppression in Birthing

In the middle of the night one night, Rebecca got up and started doing research on systems of oppression. She found a theory that said that within any system that has a strong hierarchy, that hierarchy is propped up by two pillars of oppression. The first pillar is the oppressor and includes oppressive factors, like cultures, institutions and people with power that want to keep that oppression in place. Within the system of maternity care, this would include things like the laws governing midwifery.

The second pillar, which people don’t think about as much, is the pillar of *internalized oppression*. This is where people lower on the hierarchy consciously or subconsciously accept that they are inferior, and thereby prop up the system. They also keep other people on the hierarchy down through horizontal violence, which is aggressive or hostile behaviours among the members of a group who are at the same low level in the hierarchy. You see this among people who have a lot of responsibility but very little power (think nurses and doulas!).

All of this serves to preserve the status quo. When “lower” groups fight amongst themselves, they never come together and create change. Hurt and traumatized by the system, their lashing out is a side effect of the oppressive system in which they participate.

Intersectionality is a term coined by scholar and law professor Kimberlé Crenshaw.

Change begins with individuals who realize they are valuable members of the team. Just being aware of how you fit into the system can be helpful, because you can depersonalize the treatment and disrespect to respond to it more effectively.

Resources mentioned:

Evidence Based Birth® – www.evidencebasedbirth.com

Cristen’s Doula Power Group – www.community.birthmonopoly.com

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We would love to thank attorney Susan Jenkins for her support. Susan is a national advocate for midwives and birth activists. She can be reached at (866) 686-1348.

Ep. 19 – Clinicians & Preventable Birth Trauma | OB Insider Dr. Tracey Vogel [Mother May I Series]

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During pregnancy and birth, trauma can happen. Dr. Tracey Vogel, an OB anesthesiologist from Pittsburgh, Pennsylvania talks to us about the stories of such traumas–especially those related to anesthesia and surgery–that she will be featuring in her upcoming book, and how the medical community can help prevent further birth trauma.

“There is a big gap between how providers think they are doing, and how patients think those providers are doing.”

There are many problems with how maternal care providers deal with their clients. First, they aren’t asking the right questions. The focus is almost exclusively on the physical; there is little to no addressing of the emotional or mental wellbeing of the patient. If they do ask the right questions, however, they aren’t considering that not all mothers want to tell you about their feelings, especially if they see you as responsible for their terrible experience. Care providers carry on thinking they are doing a good job. Meanwhile, women are traumatized.

“Women end up with PTSD after what should be a positive event.”

Conversations about trauma and wellbeing should happen before anyone ever gets to the operating room. Be clear beforehand about views, wishes, and expectations, and talk about contingency plans. Instead of telling the patient how things will be done, there needs to be a shift to inquiry. In order to do that, the medical establishment needs to learn new skills – how to listen and how to plan collaboratively. Being open to feedback isn’t enough; there is a need for proactively seeking feedback, really listening, and being willing to dig a little deeper. So many people are so unaware that they have trauma, or that childbirth, under care, can be retriggering of that trauma.

“One size fits no one.”

All of the protocols that we are adopting aren’t for everyone. Birthing needs to be a tailored experience. It’s hard to go through all of this training and find out we need to start again with new skills, but we do.

Advice to other clinicians:
– Get some education and learn listening skills.
– Beware of the phrase “at least.”
– Be careful with your words, even “congratulations.” Let patients put their own words to their experience.

Resources mentioned:

When Survivors Give Birth, Penny Simkin, www.pennysimkin.com/shop/when-survi…ors-give-birth/

You can reach out to Dr. Vogel at anesobstory@gmail.com

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We would love to thank attorney Susan Jenkins for her support. Susan is a national advocate for midwives and birth activists. She can be reached at (866) 686-1348.

Ep. 20 – Plus Size Birth | Jen McLellan

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Normal, healthy births happen every day, and for women of every size. And yet birth care professionals often alienate plus-size moms-to-be with shaming, inadequate equipment, and mistreatment. In this episode of Birth Allowed Radio, we talk about plus size birth and how to find a practitioner who will treat you like a person, not a set of risk factors. My special guest is Jen McLellan of www.plussizebirth.com.

“My midwife was the first health care provider to ever touch my body with compassion.”

Plus size pregnant women are often treated differently during the pregnancy and birthing process, even though 60% of the population in child-bearing years are considered overweight or obese. But our bodies are designed for this, and we can have healthy outcomes. And if we do develop complications, it isn’t because we are bad people. We should be fully supported along our journey to motherhood, and not to be made to feel ashamed.

Let’s talk about people as human beings, not just statistics and worst case scenarios.

Instead of focusing on negative possibilities, using shame and scare tactics, it is important to focus on the positive outcomes that we want. Women who are shamed are less likely to receive routine medical care and more likely to gain weight. If we make risks seem like foregone conclusions then what is the incentive to make the pregnancy as healthy as possible?

It is important to connect with size-friendly care providers.

• They have worked through any biases they have around weight and health. www.obesity.org/obesity/resources…as-stigmatization
• They don’t classify pregnant mothers as high risk based solely on BMI.
• They have the proper equipment (i.e. larger blood pressure cuff, larger speculum, scale with higher upper limit, appropriate labour bed). Your first clue about this is whether they have chairs without arms in the waiting room. The message is: “If you fit in here, then you are welcome. If you don’t, you aren’t welcome.”
• They have honest and compassionate conversations about health and weight; this isn’t about avoiding talking about risks.
“Pregnancy is an opportunity to change the relationship that you have with your body.”

Resources mentioned:

Get Jen’s Plus Size Pregnancy Bundle (30% off with code 30off) – plussizebirth.com/my-plus-size-pregnancy-bundle/
Become a size friendly professional – benourished.org/trainings-post/pr…linical-practice/
Check out Jen’s new website: www.plusmommy.com

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Protected: Physician Trauma: A Doctor Answers, Why Do We Sometimes Do Terrible Things?

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Ep. 22 –“My Injury is Forever and a Lifetime”| Kimberly Turbin

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Kimberly Turbin made headlines and history when she sued her doctor for assault when he gave her a medically unnecessary and botched episiotomy during the birth of her child. The case was resolved in 2017, but Kimberly is still dealing with the effects of the assault. In this episode, Kimberly recounts not only her experience, but the aftermath of the trauma she experienced in 2013.

“I posted the video just to see if I was crazy or not.”

The video of the birth, posted to YouTube, ended up connecting Kimberly to a community of people who have supported her, and who she has supported, with the continuing process of her trauma. Her medical diagnoses, which included vulvar spasms, dyspareunia, vulvodynia and Post-traumatic Stress Disorder, still cause considerable pain. Unfortunately, the drugs that help the condition are both expensive and make it hard to parent or work.

“My injury is forever and a lifetime.”

In the medical community and beyond, there’s a tendency to disbelieve women’s pain. When Kimberly tries to warn medical professionals that she has been through both sexual assault and birth assault, they tend to feel attacked instead of sympathetic.

It has changed the way she interacts with the medical community – even eye doctors – and it has also affected the way she parents.
But Kimberly doesn’t want anyone else to feel pressure to respond to birth trauma the way she did. The process was and is challenging; the fact that the lawsuit was resolved does not mean the trauma is resolved.

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The post Ep. 22 – “My Injury is Forever and a Lifetime” | Kimberly Turbin appeared first on Birth Monopoly.

Ep. 21 – Birthing While Black in Alabama | Sabrina Azemar

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Trying to find support for a vaginal birth after a c-section (VBAC) can be a struggle; when you are black, overweight, on Medicaid, and in Alabama, it can be almost impossible. Our guest Sabrina Azemar recounts her difficulties convincing her maternal care providers to “let” her do what pregnant bodies have been doing for centuries.

Sabrina is the mom of 3 children, and a breastfeeding and cloth diaper advocate who loves to teach women of color in her community sustainable and alternative ways to care for their families.

“Your baby will drown in a uterus of your blood.”

Sabrina’s doctor told her she was putting her baby at serious risk by considering a vaginal birth. She was told that women of color have low success rates with VBACs and she could potentially kill her child, just by doing what the body is designed to do.

From Sabrina:

“Giving birth is not a disease.” Giving birth is something your body already knows how to do, so it’s strange when they treat you like you have a diagnosis. “Birds born in a cage think flying is an illness.” Alejandro Jodorowsky

“On Medicaid, you have a government birth.” You are supposed to listen to your doctor and shut up. They say every birth is different, but they treat every pregnancy the same.

So what is Sabrina’s advice to other mothers in her situation?

• Be confident when you go to your appointment and save your tears for the car.
• Sit the regular chair in the exam room, fully dressed, until you understand and agree to the tests they want to perform. You are treated as though you are inferior when you are in the exam chair.
• Have someone that can go with you to advocate for you.
• Write down your questions on a physical sheet of paper; don’t let the appointment end until they have been answered. Practice saying your questions out loud.
• Don’t be afraid to change doctors.
• You have to be present in your pregnancy and birth. It has everything to do with your body. Own the experience.

All people want is a conversation with their health care provider. There are good doctors out there, and it is important that you find one that wants you to have a successful birth. You deserve a good birth story.

Resources Mentioned

Alabama moms of color can join Sabrina’s breastfeeding group at www.facebook.com/groups/1802852900033745/

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The post Ep. 21 – Birthing While Black in Alabama | Sabrina Azemar appeared first on Birth Monopoly.


Ep. 23 – After a Non-Consented C-Section, “I’ll Be Damned if This Happens To Somebody Else”| Sara Conrad

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Sara Conrad worked in the marketing department at the hospital where she gave birth in Northern California. The last thing she expected was to have a life-changing trauma there.

“I love doing C-sections, but that doesn’t mean you’re going to get one.”

Sara immediately felt unsupported when a doctor she’d never met responded to her birth plan by telling her she loved performing Cesareans, and the nurse seemed terrified that Sara was laboring on her hands and knees.

Things got worse from there.

“Don’t you care about your baby?”

Unable to speak while on heavy medication and ignored by her care team, Sara was rolled back for a Cesarean without her consent and without knowing why she was having surgery.

Afterwards, she felt disconnected from her baby and, on top of that, guilty about not feeling more joy about her birth.

“This is my friend, and she doesn’t believe me.”

Her trauma carried through to postpartum, and she eventually left her job–angry and feeling betrayed about how she’d been treated and the lack of empathy and accountability from her co-workers.

“I have a lot of rage and I want to use that to propel me forward and try to prevent it from happening to other people.”

Today, Sara is still seeking answers and healing–following up to take the hospital to task and to advocate for other birthing women by working on the documentary film about obstetric violence and birth trauma, Mother May I.

 

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The post Ep. 23 – After a Non-Consented C-Section, “I’ll Be Damned if This Happens To Somebody Else” | Sara Conrad appeared first on Birth Monopoly.

Eps. 24-25 –“They Wouldn’t Let Me Call it Assault Because We Need to Protect the Doctor”| Anon. Nurse

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WARNING: This story includes graphic detail and may be difficult to listen to.

In these stomach-churning episodes (Parts 1 and 2), nurse “Britany” describes witnessing what she describes as a violation and assault on a laboring woman: a so-called “manual episiotomy” by the doctor–a move she discovered was routine for him.

Find out what happened when she tried to report the incident up the chain of command in Parts 1 and 2 of Britany’s story.

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The post Eps. 24-25 – “They Wouldn’t Let Me Call it Assault Because We Need to Protect the Doctor” | Anon. Nurse appeared first on Birth Monopoly.

When Your Lawyer is Your Doula

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Part I: The Lawyer

Part I is by birth and human rights lawyer Hermine Hayes-Klein, who practices in Portland, Oregon.  She originally wrote out this story in a private Facebook post dated October 22, 2018.

I had my first experience as a lawyer-doula last night, and I would like to share it. This is for the doulas, and anybody else interested in human rights in maternity care.

Years ago, after hearing my x-hundredth story of a woman’s rights being violated during childbirth, it occurred to me that many women could use a doula who they could introduce like, “This is my doula… and she’s also my attorney.” The people who say that you shouldn’t need a lawyer in Labor & Delivery haven’t heard the stories I have. But I never offered to serve as a doula myself until last month, when my massage therapist, K, told me a story that made me decide to hang out a shingle (when I update my website) as a lawyer-doula.

K told me that another client of hers, who is also a lawyer, was mistreated during her first birth, is pregnant again, and told K how scared she is that she would be traumatized again during her second birth. K said that she told the client that if anything bad happened, she knew a lawyer who she could call afterward. I said, “That doesn’t make sense, for her to wait until after she’s abused to call me. If she’s really worried about it, I can meet her at the hospital as her doula, and make sure that doesn’t happen.” K’s client hasn’t contacted me for lawyer-doula services, but the conversation opened my willingness to show up for women in that way.

Meanwhile, I have a 20-year-old law client, M, who was brutally assaulted by a nurse during the birth of her first child, about 18 months ago. I am helping her to pursue legal accountability for this traumatizing violation of her right of informed consent and refusal. M is pregnant again, planning a home birth this time, but of course the possibility always exists that she may have to avail herself of hospital services. When we spoke a week or two ago, I could hear in M’s voice how frightened she was at the possibility of having to go to the hospital. I said, “Listen, if you have to go to the hospital for any reason, before, during, or after the birth, you can call me and I will meet you at the hospital, and be your doula.” She cried with relief.

Last night around 7pm, I got a voicemail from M’s young husband, S, saying that they were at the hospital. I called back and he explained that they went in because she had been having contractions that afternoon, premature at 33 weeks, so she had gone to the hospital for assessment and treatment. She had experienced contractions at 33 weeks in her first pregnancy, they had been stabilized with medication, and she had carried her baby to term. He said, “They’re touching her and they weren’t stopping when she asked.” I asked him if she wanted me to come. He checked with her and said, Yes.

So I went to the hospital, and when I entered L&D I asked a nurse to point me to Room 4. She did not look happy, and she made a remark that indicated that she was stressed out about the dynamic with the patient in Room 4. As I walked into M’s room, a nurse walking out returned my smile, and I had the feeling they had sent in their gentlest nurse in response to whatever had occurred before my arrival. I went into the room, and M was reclining on a hospital bed with her sweet husband S in a chair beside her. I remembered how important it was for my midwives to come in quietly when I was in labor, so I came in calm and quiet, smiled at them, and sat quietly until she was clearly not having any contraction and had adjusted to my presence.

I said, “Nobody is going to touch you again without your explicit permission. I am here to ensure that all your rights are respected, including your right to genuine informed consent and refusal. I will make sure that nobody comes into your personal space unless you have welcomed them into that space, even if I have to form a human shield. You can relax completely.” I remembered from an earlier case I worked on, that stress can accelerate preterm labor; it was important for her to feel safe and calm. I addressed S and said that he could relax too, because it was no longer all on him to ensure that M was heard and that her rights were respected. They both looked happier. I put pillows behind M’s head, so that she wouldn’t have to use her neck and shoulder muscles to hold it up in the position she was in. She relaxed more.

The gentle nurse, J, came back into the room, saying “Now there’s a smile! Wow what a change! We haven’t seen that yet!” I felt the tension rise in the room, just from the well-intentioned nurse walking in. She told M that she wanted “to start IV fluids, ok?” I hadn’t yet had any chance to hear from M what was going on clinically, and whether she was comfortable with whatever was happening around that. I said, “Is that what you want? Do you want IV fluids now?” I was conscious that [nurse] J didn’t know who I was, and that I was now raising red bossy-doula flags. M said Yes, IV fluids were fine. I went to the other side of the room while J did her work. When J left, M and S told me what had occurred before I arrived: 3 female nurses and a male OB entered the room to “get M set up” and assess the situation. 2 nurses were touching M at once, one of them jabbing her arm painfully to get an IV port, without success. The OB said that he “needed to do a cervical exam.” M said that she preferred a vaginal exam from a female practitioner. The OB said that there were only male doctors on call that night. M said, “I see three women in this room,” knowing from previous experience that RNs can do cervical exams. One of the nurses then proceeded to do a vaginal exam, reporting the good news that M was only 1cm dilated. While she was doing the vaginal exam, another nurse was pulling out the IV from the arm that didn’t work, while another nurse was prepping M’s other arm to try the IV there. A contraction came, increasing the discomfort and distress of all their touching for M, and the nurses all proceeded despite the contraction. M had enough and said, “All of you please stop touching me right now!” and she was insistent that they stop and step away from her. When one of the nurses did not immediately comply with M’s request to stop touching her, that’s when S called me.

I asked M if she had told any of them what happened in the first birth, or of her history with the violation of bodily autonomy prior to that. She said that she had briefed J—the nurse who was sent in after the first team left—on these events. I asked her if she wanted me to tell them who I was, that I was her lawyer, that I’m here as her doula, and to explain the background to this medical staff, and what she needed from them. She said yes, they wanted me to do that. During this conversation, the male OB poked his head in at one point. He looked nice enough, he looked a little frightened by M’s powerful-woman boundary-setting, and I could tell that he and his team were curious about my role.

I was so proud of my gentle, soft-spoken client for the fact that she had already set her boundaries before I got there, by her using her voice, with just her and her husband present, having pre-term contractions at age 20, saying “NO” and “step back” and “absolutely not” to a room full of medical professionals. During her first birth at 18, she and S didn’t even have the words during labor to understand how their rights were being violated, couldn’t find the words to tell anybody that she had been assaulted. M was so traumatized by the violence of that birth that she hadn’t been able to bond with her baby for months, and was debilitated. M’s sweet baby had loved her out of that trauma, as had her devoted husband. She went through hell, but now she was better, and she would be damned if that was going to happen to her a second time. She looked absolutely beautiful, with no makeup, strong and radiant on her hospital bed. I observed to S how beautiful she looked, and he agreed with me, while looking at M as if he was looking at the light of God.

When J came back in and gave M her medicine to stop the contractions, I introduced myself. I told her the story of what had happened in the first birth, after asking M and S again, in front of J, if they were OK to revisit this story and wanted me to tell it to J and her team. I explained that I was the lawyer who M hired to address that experience. I told her that I was aware that M was pregnant again and planning a home birth, as many women do following an abusive experience during a previous hospital birth, but that of course M might need to avail herself of hospital services at any time. I told her that I had assured M that she could call me any time she needed to, and that I would come as her doula, and would make clear for anybody necessary the relationship between M’s rights, and their efforts to provide her with healthcare. I said, “I’m just here to make sure that M’s right of informed consent and refusal is upheld, and that nobody touches her body without her clear, explicit permission, given freely on the basis of accurate information about her treatment options, and their risks and benefits. In no way do I want to interfere with your clinical relationship.” I said that I would be present so long as M wanted me to be. I made numerous remarks affirming J and her colleagues’ efforts to listen and to provide safe, respectful maternity care, and how much we appreciated that. J said, “Well she certainly looks much happier after you arrived!” I said, “Yes, because she feels safe now. And I know that we both agree that every patient in this hospital, especially those gestating babies, should feel completely safe throughout their care.” I told J that I would be happy to introduce myself to any of her colleagues, and to explain the background and my client’s needs. She said that she would go talk to them and be back to me. I said, “I realize that it may be triggering for them to hear that M has called in her attorney-doula. Please let them know that we are all on the same team, and that I’m happy to discuss the situation with any of them.”

After a bit, J invited me to come out and talk with the charge nurse. I sat down with her and told her the story again, said the same basic stuff. They asked if M was upset about the way she had been treated there so far, and I said: “Any woman who has been assaulted or violated in the past can be alarmed just by your team going about the business of doing your work and trying to provide care. Given that 1 in 3 women have experienced sexual assault or childhood sexual abuse, you can expect that if multiple people are crowding around them and touching them, especially without a lot of communication and listening, they’re going to be triggered.” I said that what was needed was a lot of communication and really clear informed consent. I expressed M’s needs thus, reminding the charge nurse that this applies to all victims of sexual assault, and that because many women don’t disclose their histories, they might want to apply this to everyone:

“If your team could imagine a bubble around M’s body of 3-4 feet. Please do not enter that bubble, with any part of your body or any object, until you have looked her in the eyes, communicated about why you are proposing to enter the bubble, provided her with as much information as she wants about the risks and benefits of her options, and asked her if she is comfortable with you coming into her personal space to do the thing. Then really look at her, pay attention and listen to her. Only if you are sure that she is comfortable with you coming into the bubble, should you enter.”

I won’t say that the nurse looked delighted with my beautiful proposal. But she was agreeable to it. Again, I dropped many affirmations along the way, expressing my assumption that these are all good people, doing good work, and trying to provide quality individualized care. As I stood up, I remarked to the charge nurse how proud I was of my client for the fact that, even after what she had gone through, she had not hesitated to go to the hospital that day when she experienced pre-term cramping. The nurse said, “But of course; she wants her baby to be safe.” I said, “Yes, but as you know, studies from around the world show that fear of disrespect and abuse can cause pregnant women to delay or avoid accessing facility-based care.” She acknowledged this, and we agreed that it was good that M was at their hospital and could receive the care she needed.

I went back into M’s room and told her and S everything that had happened. I lay on the couch for another 45 minutes, breathing slow and grounded to hold the space, listening to M’s stories of how she and her siblings were born, how her mother talks about those births, her grandmother’s births. J came in and out to do her thing, showing respect for the bubble. The medicine was working; the contractions had slowed and were stopping. At 10pm, M said, “I think they’ll be sending me home tonight. I feel comfortable now. If you’re tired, you can go home.” I said, “Are you sure? You get to feel safe. Are you sure that you will feel safe after I leave? Do you feel safe with this team? I believe that they will respect your rights. What do you feel?” She said that the dynamic with them was fine now, and she thought it would continue to be. I told her that she could call me back at any time during the night, and that if any kind of problematic dynamic arose, she could say “Don’t make me call my lawyer back in!” M and S looked happy and comfortable.

I went out to where J was standing by the charge nurse. I said to them, “M feels comfortable and safe that everybody is on the same page with her need for respect and informed consent. She feels really good about the respectful and compassionate care that J has been providing. M doesn’t feel that she needs me here any more. Thank you so much for your sensitivity and quality care.” J said, “She really turned around after you got here! What a change!” The third time she made this point. I reminded her that it’s all about feeling safe, told them to keep up the good work, and went home. I texted with M, who let me know that the medicine had worked, they were finishing the IV fluids, and she would go home that night. So she’s home now, baby is safe inside, and she spent this morning napping with her toddler. I called her today to mirror for her how she stood up for herself last night and how proud of herself she should be. She agreed. She sounded happy.

This morning I told my husband what happened, and he remarked that a lot of the time, people are treated like the lowest common denominator, unless they can produce some “social signifier” that they should be treated better, and that I had served this function for M. That’s why people get fancy cars and fancy clothes, he said. I recognize that the attorney-doula is not an accessible option for most women, and of course shouldn’t be necessary for any. But it still felt real good to see my 20-year-old client empower herself by calling in her lawyer-doula to make her rights clear in L&D, and being able to play that role effectively for her with the team at that hospital. I know it could have gone a lot of different ways, and we were blessed that everyone wanted to make the situation work.

Do I feel like the fact that I was a lawyer added to my client’s sense of security once I arrived? Absolutely. Do I feel that it affected my confidence level in communicating with medical staff on her behalf, not to mention my ability to distill and represent her story? 100%. Do I think that it affected the staff’s ability to hear the things I said and be willing to respect my client’s boundaries effective immediately? It didn’t hurt. These hours were the first and only time that I have leveraged my legal privilege to ensure that a client’s rights were respected in reality during childbirth. It worked out well, in a way that increased my confidence that all doulas have a role to play in helping to ensure that healthcare is provided in a way that respects women’s needs regarding their personal space. 

 

Part II: The Mother

This is by M, the mom at the center of this story.  She wanted to share her name but is precluded because of the status of her lawsuit.  She is eager to come forward publicly in the future.

So last night was extremely triggering for me.

With my previous birth, I was heavily abused. Part of my trauma is from being held down and forcibly drugged as well as being forced to sit on a toilet causing a tear near my cervix.

Well, I am currently pregnant again, a little over 33 weeks to be exact. Last night I went into preterm labor and had to go to the hospital. My midwife knows what I went through the first time and recommended a hospital where she thought I would be safe. I arrived and was nervous but hopeful.

They brought my husband and I to a room where he helped me pee in a cup and put a gown on. I looked back at my husband to see if he needed help tying the gown. When I turned back around, trigger number one, a nurse was standing directly in front of me violating my space just as the nurse did with my first birth. She took us back to the bed where I was quickly surrounded by her, two other nurses and a male doctor. They immediately began hooking me up to the fetal monitor and stabbing my arm to get an IV. This wasn’t exactly a trigger but very anxiety inducing and I felt extremely under attack. The nurse trying for an IV spent way too long digging in my arm which was extremely painful especially as I was having contractions. I told her she had to stop.

This whole time the male doctor was trying to tell me he had to do my cervical check [an assessment that would involve his hand in her vagina]. I said no way and of course he asked why. I told him, “because you’re a man”. He rolled his eyes at me and proceded to try to explain that only male doctors were on call tonight and it had to be done. I told him I did not care, he was not going to touch me. As I’m sure you ladies know, any L&D nurse can do a cervical exam, and in that moment I was surrounded by 3 women nurses.

He finally agreed to let a nurse do it, but did not leave the room. She began the exam and another nurse held a heat pack firmly on my arm to make it easier to find a vein. The exam was extremely painful and I asked her to stop, but she didn’t. As I believe anyone’s reaction would be, I tried to pull away. The nurse holding the heat pack on my arm grabbed me harder and actually held my arm down. I began panicking as being held down is a HUGE trigger. I asked that I stopped being touched. The nurse doing the cervical check finally pulled her hand out [of my vagina] but the other nurse would not stop holding down my arm.

I screamed for my husband to call my lawyer as she had told me she would come to the hospital at any time to act as a lawyer-doula to ensure my rights and body were respected, they obviously were not being respected. He left a quick voicemail as I screamed again for them to “stop touching me! Just stop!” Because the nurse still would not stop holding my arm. I could not go anywhere as I was strapped to the monitor and trying to pull my arm back was painful, the nurse was very strong. The entire situation was making contractions worse and I was in full blown panic. After my husband left the voicemail he rushed to my side and demanded that she let go of me as I was screaming, crying, and thrashing on the bed.

As soon as she let go I clutched my husband. All of them left the room and my husband also called the midwife to see if she could come because I was scared to let anyone else touch me. She wasn’t sure if she could make it but said she would try.

Eventually a team of nurses came in again saying there was a shift change. They introduced me to the new nurse and filled her in on how long and how frequently I had been having contractions. She was much more gentle and wary of boundaries than anyone had been since we arrived. The other nurses left and the entire atmosphere changed. I was able to calm down and catch my breath a little.

The lawyer my husband called, called back and said she would be there soon. My husband left the room with the new nurse to try to explain why I had been so upset.

The lawyer arrived and we filled her in. After things were settled she asked if I was comfortable with her introducing herself as my lawyer and doula and explaining to the team the importance of boundaries especially with me as a patient. I said yes and she did as such. She first introduced herself and explained to the nurse who had been coming in then asked if she should speak with the rest of the team. The nurse left and came back and said the doctor was currently in a delivery, but the charge nurse could speak with her. She left the room and spoke with the charge nurse then came back. She said that she felt the charge nurse had understood.

Eventually I was able to leave the hospital after contractions had stopped and my IV bag was empty. I left that hospital feeling heard, supported, and empowered. It started terrible, but I feel like it was a big learning moment for those nurses and doctors. I feel very proud to have been able to really shine a light on obstetric violence for them and remind them that it does happen, it is real, and I will NOT let it happen to me again. I felt very in control and most of all, I felt like person. It is terrible what us women have gone through, but by supporting one another we help each other find our voices again and we can use our voices to make REAL change.

I’m literally sitting here rocking my son to sleep for his nap with happy tears running down my face.  It took me so long to find my voice and be able to speak about what happened after being silenced by so many and now to know that my voice will be heard by so many is such an amazing feeling. To be part of the change takes my breath away especially knowing that another woman may read it and be inspired to find her voice like I did.

THIS is what women supporting other women is. THIS is what empowerment is. THIS is how change happens. I walked into that hospital shaking with fear and walked out with my head held high. For the first time I think ever I did not feel the need to apologise for my feelings, for having a panic attack. For the first time I did not feel the need to apologise for using my voice. I am a woman, and damn it you will not only hear my roar but you will listen to it! ✊✊

 

Part III: The Commentary

Hi, this is Cristen at Birth Monopoly.

I understand that this story is going to evoke lots of different and strong responses.

I think many birthing women will find this exciting and validating and empowering.  They are ultimately who Birth Monopoly is here for.

I think some doulas will find this triggering for various reasons:

  • Professional doulas may be frustrated that a story like this further confuses the role of the doula in the birthing room
  • More passive doulas may see the direct interactions with medical staff as outside their role and feel it reflects badly on all doulas
  • Activist or advocate doulas may be frustrated that this mom couldn’t find or didn’t know to find a professional doula like them to serve this role for her

I would ask all doulas to step back and look at the larger picture of what this mom’s needs were and how those needs were met. And really dig deep about your reaction.  What feelings underlie it?  What feelings are under those feelings?  Do you feel liberated in your role as a doula or constrained?  Are you able to use your judgment, be creative, be bold as a doula, or do you feel like you have a script to run when things get tricky?  Where does that script come from, or those limits?

The doula role is self-defined.  Limits on that role are placed by the system in which doulas work and by organizations representing doulas themselves in an effort to professionalize the role in a medical setting.  Ultimately, most doulas are independent professionals who work directly and exclusively for birthing people and, as a profession, have limitless potential to define their own role.  In fact, one of the core values of a doula is that they are not beholden to anyone except their client.

How do we really want to define that role, today, in a system where doulas are traumatized by what they witness as their clients are traumatized by what they experience?

It’s a discussion worth having.

 

Suggested listening for doulas

  

The post When Your Lawyer is Your Doula appeared first on Birth Monopoly.

How An Abortion Amendment Impacts Wanted Pregnancies and Birth

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Out of respect to the diversity of beliefs and values among our supporters and team members, Birth Monopoly has never publicly addressed the issue of abortion.  We have chosen to make an exception to that policy to write about a current event that is inextricably linked to pregnancy and birth.  We ask that readers engage in this discussion with respect and compassion.

In November 2018, Alabama passed an amendment to its constitution making it state policy to recognize and support “the sanctity of unborn life and the rights of unborn children, including the right to life,” as well as to “ensure the protection of the rights of the unborn child in all manners and measures lawful and appropriate.” The amendments also stated that “nothing in this Constitution secures or protects a right to abortion or requires the funding of an abortion.” (Read it here.)

What this describes is called “fetal personhood.”  While this concept is generally associated with efforts to outlaw abortion, fetal personhood also directly impacts the rights of women carrying fetuses at any stage from conception on.  (Throughout this article, I will use the medically accurate term “fetus” to describe a baby that is not yet born). Let’s take a closer look at the concept and its implications on wanted pregnancies and births.

Fetal personhood means that a fetus is a person with a set of rights that is separate from the person carrying them. This idea exists outside the U.S. constitution, as fetuses are not included in what we understand to be legal persons.  Various states, however, have advanced policies and law that view fetuses as legal people with constitutional rights, with Alabama’s new amendment perhaps the strongest law to date. When this happens, the fetus, which cannot speak for itself, must be represented by someone, and that representative is invariably NOT the person carrying the fetus.  Once a fetus has rights endowed by the state, the state is empowered to act on behalf of the fetus—or, in cases we have seen around the country for decades, doctors and hospitals act on behalf of the fetus against the mother, with the blessing of the state.

Although the language in Amendment Two was ostensibly written to apply to abortion, the wording is so broad that it extends state and medical authority over every stage of pregnancy and birth, potentially including how and where women give birth.  In a state like Alabama, women’s rights during childbirth in hospitals are already ignored on a massive scale. It was only in 2017, after a years-long battle, that the legislature agreed to decriminalize and license Certified Professional Midwives, creating a legal pathway for home birth in Alabama.  On both of these fronts—how to give birth and where to give birth—the “safety of the baby” is the central argument, with medical, hospital, and physicians’ groups positioning themselves as the authorities on this question. So far, they have successfully restrained women’s rights and options in practice and in law WITHOUT an actual legal basis for fetuses being their own people with a set of constitutional rights.  Amendment Two provides them with not only a strong legal basis, but what could be interpreted as a requirement to impose their preferences on the bodies, choices, and options of pregnant people.

As an example, a physician who does not care for vaginal birth after Cesarean might impose a repeat Cesarean on a patient who wishes to have a vaginal birth with the argument that a Cesarean is safest for the fetus, and it is the physician’s legal duty to act on behalf of the fetus.  In this case, the woman’s right to decide how she gives birth is immaterial versus the doctor’s state-supported mandate. This scenario is neither far-fetched nor imaginary. It has already happened prior to the amendment, both in and outside of Alabama, and now physicians like these are in a significantly stronger legal position to act thusly in future.

There are many more scenarios made legally possible by an amendment such as this, including:

  • Prosecuting a woman who has a stillbirth for any type of behavior that is seen as risk-increasing, such as taking anxiety medications or choosing alternative therapies over medical treatment
  • Compelling a pregnant person to have an induction or Cesarean at an arbitrary deadline; removing her newborn into state custody if she refuses
  • Prosecuting a woman for an accidental home birth and/or removing the newborn from the family into state custody
  • The state medical association challenging the constitutionality of the newly passed midwifery legislation on the grounds that hospital birth is safer for babies
  • Prosecuting a pregnant woman for leaving the state to give birth as “kidnapping” or “appropriating” a fetus

It is important to note that there is no objective scientific basis for the actions in any of these scenarios, but that might not be necessary when so much weight is given to the opinions of those who are considered authorities, now supported by state policy.

Caroline Malatesta, the mother who suffered a permanent nerve injury after being wrestled to her back and her baby held in during birth, said:

“When I took my hospital to court, they argued over and over again that they had the right to make decisions about my birth because they were looking out for my baby–as if they cared more about him than I did! I am so worried that this amendment makes it that much harder for moms in Alabama to protect their babies from what we know is some of the most outdated maternity care in the country.”

Here are some other perspectives from Alabama-based advocates who have on-the-ground experiences with these issues:

Safer Birth in Bama, an organization that works to increase access to care, improve outcomes, and inform citizens about issues surrounding the maternity care crisis in Alabama, does not take an official stance on abortion, but says:

“Amendment Two has given us great cause for concern about matters related to safe birth. The wording is vague enough that it could be used to make a woman’s choices in childbirth secondary, regardless of how safe and reasonable they may be, if they are contrary to the plan of the health care provider. It could potentially be used to force women into certain courses of action based on the safety of the baby and doesn’t give clear consideration for the safety of the mother. Now, more than ever, it is going to be important for women to choose a provider that they can trust. In a state where our cesarean rates are high, our preterm birth rates are astronomical, and our infant mortality ranks at the bottom of the list, we encourage all families to be vigilant and educated consumers.”

Courtney Sirmon, former president of the Alabama Birth Coalition, disagrees that a state constitutional amendment like Amendment Two restricts women’s federal constitutional rights, but has concerns it might be misapplied by medical professionals unfamiliar with how state and federal law interact. She says:

 “It needs to be clear that this amendment does not give a woman any less power to exercise her right for birthing choices. I saw a nurse on Facebook this morning say ‘maybe we can’t say it’s your decision anymore.’ This misinformed power and thinking is truly my concern. It is the possibility of a false interpretation of power that could be an unintended consequence of this amendment.'”

Katie Terry is a self-described pro-life conservative, a consumer of midwifery services, and a doula working on the team to open Alabama’s first freestanding birth center.  She says she feels “unprotected” on a personal and professional level:

“This vague language will leave a gap for medical professionals and legislators to make decisions for women on whether or not they are being ‘safe’ with their unborn child. It is broader than just abortion. I was told by a senator who is also an OB/GYN that I was a ‘terrible mother for putting the safety of my children at risk by delivering them outside a hospital.’ That senator could use this amendment against me because his opinion was that I was putting my babies in harm’s way by using a Certified Professional Midwife. Professionally, I worry about our birth center, using this to scare doulas out of practicing, or preventing alternative birth locations to develop.  I’m afraid we need to put our plans [for the birth center] on hold and figure out how this will affect us.”

Jesanna Cooper is an OB/GYN, educated, trained, and practicing in Alabama.  She says:

“I am saddened by the passage of Amendment Two.  The broad language takes decision making capabilities out of the hands of pregnant women, completely undermining my physician/patient relationships and the processes of informed consent and shared decision making.  I am also concerned that it will further exacerbate Alabama’s maternal mortality crisis by not acknowledging the life of the mother. Ectopic pregnancy, previable rupture of membranes and chorioamnionitis are just a handful of situations where the life of the mother may be in question while a fetal heartbeat remains.  Personal health decisions are complicated and nuanced with many shades of grey. They should not be made by the Alabama State Legislature.”

It remains to be seen how Alabama’s Amendment Two impacts wanted pregnancies and birth.  Some people are optimistic that the state and state actors (medical professionals who are required to report to and act on behalf of the state) will not abuse the intent of the amendment by restricting the rights and options of people carrying wanted pregnancies.  Based on everything we have seen in Alabama, from legislative and courtroom battles to the testimony of hundreds of people harmed by maternity care services there, we do not consider it rational to place this kind of trust in its state government or medical community.

We invite readers to keep us posted on what you see on the ground (please contact us here) and wish Alabamians the best navigating this new landscape.



A former communications strategist at a top public affairs firm in Baltimore, Maryland, Cristen Pascucci is the founder of Birth Monopoly, co-creator of the Exposing the Silence Project, and former vice president of the national consumer advocacy organization Improving Birth.  In that time, she has run an emergency hotline for women facing threats to their legal rights in childbirth, created a viral consumer campaign to “Break the Silence” on trauma and abuse in childbirth, and helped put the maternity care crisis in national media.  Today, she is a leading voice for women giving birth, speaking and consulting around the country on issues related to birth rights and options, and working on a documentary about mistreatment of birthing women.

The post How An Abortion Amendment Impacts Wanted Pregnancies and Birth appeared first on Birth Monopoly.

A Call to Advocates: Compassion and Loss in Out-of-Hospital Birth

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From Cristen:

As an advocate, it is easy to feel protective of the fragile movement for respectful, rights-based maternity care. There is a lot of criticism of that movement, and the majority of it is rooted in sexist, racist, and historically skewed treatment of midwives and women.

But as a communications professional who very closely follows media around maternity care, I’ve realized something over time that conflicts with my own protective instincts around a movement I deeply support. That is: when it comes to the things that must change, the ways in which advocates and professionals fall short and can even perpetuate harm, these harms are only rooted out when they are aired out. It forces a reckoning. This kind of a reckoning–public and uninvited–is a difficult one, of course, because it does not come from a place of love and collaboration.

Along those lines, this past weekend, an extraordinarily lengthy, in-depth investigative journalism piece examining the out-of-hospital (OOH) birth industry was published. The piece included numerous accounts that have surfaced over the years, as well as some previously unheard stories, of families whose babies died at or following an OOH birth. Many appear to have received poor care from their midwives and/or affiliated obstetrician.

I was pleased that my dear friend and colleague Diana Snyder gave me permission to post her thoughts on that investigation here as the following article. After reading what she so brilliantly wrote, I knew I would not have written anything different and it’s past time we dive into these tough conversations. Diana and I have worked together closely over the years on many difficult issues in the world of birth advocacy and I value her perspective very much. I second her invitation to discuss how we, as advocates, can do our best to support all families and value accountability in every setting.

A word about Diana: When Diana and I met at one of my workshops about legal rights in maternity care about six years ago, she was an associate at a top national law firm and interested in birth issues.  In addition to her day job, she immediately joined our small, determined group of advocates to play a leading role helping young mother Kimberly Turbin bring a lawsuit for medical battery after a forced episiotomy.  Among her other critical work on Kimberly’s case, Diana was the lawyer who contacted 80-some individuals and organizations to try to convince one of them to represent this woman–ultimately, successfully.  Since then, she has moved to Boston to work at another top law firm and then left corporate practice altogether to establish Matrescence, a private doula service supporting women and families through birth and postpartum, and a parallel legal and patient advocacy practice dedicated to women’s rights in childbirth and the practice of midwifery. Diana serves as outside counsel to the Bay State Birth Coalition, a consumer organization advocating for legal recognition of certified professional midwives in Massachusetts. Today, she is a valued source of support to both her doula and legal clients, who range from women and families to midwives and other birth professionals. She now resides in Southeastern Massachusetts with her husband Mike, son Bennett and beloved vizsla, Rocky.

From Diana:

As all my friends know, I am a strong OOH birth and midwifery supporter. As such I always approach negative media coverage with a very skeptical eye. Given the historical oppression/misunderstanding/oversimplification of OOH birth and midwifery by medical interests and society generally, such pieces are typically riddled with bias, lack necessary context & nuance, reference debunked studies and more. Its very frustrating.

I am not going to go into detail about the ways in which this piece exhibits the usual deficiencies. That’s not the point of my post here.

I read the piece in its entirety, with an open heart, and struggled with it all day yesterday. As an OOH birth/midwifery supporter, I feel a moral and ethical obligation not to dismiss every piece of negative coverage out-of-hand. I feel an obligation to sit with the hard issues, and acknowledge them in my community. What I wish to share is this.

The problems with this piece do not discredit the fundamental issues raised: (1) while rare, loss absolutely happens in out-of-hospital birth. (2) sometimes, losses are the result of poor quality care and lack of true informed consent. (3) in such cases, accountability is elusive. These are facts, and I do not think we should hide from them or deflect attention from them by pointing back to how much negligence exists in hospitals, how these pieces are driven by anti-CPM propaganda, or how families traumatized in the hospital don’t get accountability, either. These things may be true, but families who have been traumatized by or suffered loss from their home birth experiences also deserve to be heard, if they want. In particular, they should be heard and validated and supported WITHIN the home birth community — not just by outside, anti-home birth interests because they have nowhere else to turn.

In that vein, I find it especially concerning that some of the loss families featured in this article report being shunned and even blamed for their babies’ deaths by the birth community. One mother reported being “booed” by other home birth moms when she showed up to testify in court about the death of her baby. The article also quotes a midwife blaming a loss mom by alleging the raging infection that killed her baby was the result of the mother’s choice to labor in water — a near universal, safe practice/request at home births that midwives would vehemently deny is dangerous in other contexts. Even if blame is unjust, who boos a loss mom? Who suggests that the death of a baby is the mother’s own fault? These accounts are astonishing to me, and while they may not be representative, I think we should discuss them.

At this juncture, I feel the need to point out that making loss families feel alone, blamed and unheard — even unintentionally — is exactly how pieces of this nature get traction, and how the “Skeptical OBs” of the world exploit the grief and isolation of these families to further an anti-home birth, anti-choice-for-women agenda. I do not want to minimize how terribly difficult it must be to have a conversation with a loss family about the cause of their baby’s death, and how sometimes, blame may occur even if unwarranted. It is natural for care providers to feel scared and defensive. Nonetheless, we must acknowledge that questions about care are legitimate and to be expected in the wake of loss. Suppressing them is extraordinarily unfair and damaging to the family, and increases legal and PR risk to the midwife. We cannot decry the anti-home birth movement and dismiss pieces fueled by it without examining the ways in which our own self-protective conduct may contribute to that sentiment. We must offer loss families a safe space within our community, first and foremost because it is the right thing to do, but also, because an ounce of prevention is worth a pound of cure when it comes to extreme narratives in the media, anti-choice and anti-midwife legislation, and anti-home birth sentiment.

I will also comment on the notion of personal responsibility in home birth. I have written before about how taking responsibility, and accepting the outcomes for our decisions, are extremely important when planning a home birth. And I stand by that. But just because families take a higher level of responsibility when planning an OOH birth, certainly does not mean midwives are automatically absolved of responsibility. Midwives are trained professionals, with competencies, standards of care and ethical obligations. Every midwife I know takes their responsibility for practicing those things seriously.

In order for a family to truly take “responsibility” for a poor outcome, there must have been informed consent not just about the original choice to plan a home birth, but at every decision point during the whole course of care, including labor. Home birth is not merely a one-time rejection of hospital care; it is ongoing collection of many complex decisions — an evolving assessment of whether home is still the safest, preferred place. Whenever changing circumstances, including during labor, warrant reexamining the decision to stay home, issues of informed consent, standard of care, gray area in recommendations/risk, and others are implicated. Midwives bear a heavy burden in terms of initiating these conversations for the client’s decision when appropriate, while not needlessly bringing distraction and fear to the laboring person. I don’t envy that.

Because OOH birth is widely seen as a panacea to poor hospital care, it is understandable that sometimes, both consumers and midwives may be lulled into a low-key approach to these things. But clients cannot be expected to take responsibility for a poor outcome if they were not adequately informed of risks/benefits and given clear choices — including the option to transfer or stay the course — at key junctures on the path to loss of life. These are complex discussions beyond my experience — reasonable minds can disagree about what constitutes adequate information for informed consent on a particular issue and when exactly something reaches the point where it needs to be raised with the client prenatally or during labor. And there’s also always the issue that sometimes client and midwife accounts differ. But I have faith that the home birth community can reflect on whether current approaches to informed consent in the OOH setting actually allow parents to take responsibility for outcomes.

I cannot imagine how difficult it must be to approach a conversation with a family when there is a dispute as to whether a bad outcome was avoidable and what the appropriate allocation of client vs. midwife “responsibility” is. And I don’t deny that sometimes, blame may be placed without cause. But loss families are entitled to explore these things with their midwife, with whom they have developed a close and trusting relationship, and who is often the only other person with firsthand knowledge about the death of their baby — something grieving families will naturally be desperate to dissect. They are also entitled to talk about their experience in the birth community that they have become a part of without being attacked and guilted into silence. I know that these conversations can be had, without ghosting or getting defensive, and certainly without resorting to blaming or smearing a loss family. I would welcome the chance to discuss how to do so with my friends who have a view on it.

Many will be saying “NOT ALL MIDWIVES” — and I agree. I cannot see a single home birth midwife that I know acting the way described in that article, and yet, I still believe that it happens. I consider myself a believer of women’s lived experiences, and if I am that, then I will also make room for women who say that their home birth team caused harm, just the way I believe women who experience harm in the hospital. Just because it is rare, and because home birth is a vulnerable underdog that needs protecting in many ways, doesn’t mean we should sacrifice these families to protect a narrative of home birth as unassailable. They are not disposable. They are us.

We need to have the hard conversations. All industries suffer from similar problems, and there is no shame in admitting it — especially because many of these issues are the predictable legacy of how oppressed and marginalized OOH birth/midwifery have been and a direct result of industry and consumer retaliation against hospital care. Admitting it is part of accountability and this can only make home birth stronger, in my opinion. Taking ownership of problems can distinguish the home birth community from hospital systems in a positive and meaningful way.

So, I would like to call in my many friends who have had OOH births, support OOH births, and attend OOH births, to continue the conversation with me about how we can better support loss families, and support midwives in feeling secure enough to have hard conversations with loss families, so that they aren’t made to feel at fault, isolated and ostracized in their grief. The OOH community is built on the notion of supporting all women, holding space for birth trauma, and so forth. This must ESPECIALLY be the case for those whose birth stories are really hard to hear — the stories that are tempting to sweep under the rug and dismiss as the inevitable cost of all the other lovely home births and happy clients that are easier to lift up. Let’s also support midwives in talking with loss families, and in reflecting honestly on whether something could have been done differently. Throwing up walls, dismissing the family’s recollection of events, protecting the cause at all costs — this is conduct that I expect from hospitals, not from the OOH community. There will also be clients who decide to cut off communication with a willing midwife of their own volition, and who may turn anti-OOH birth no matter how thoughtfully the midwife approaches discourse. This cutting off of contact is tragic and painful for the midwife, who is also suffering. All of this suggests a lack of sufficient resources for navigating these heartbreaking situations. So let’s open it up and talk about it. How do we help these situations go better, while also acknowledging that it won’t always be as simple as kumbaya? Midwives are not equipped to shoulder the entire weight of their client’s grief, and also shouldn’t wear a target on their backs. But there must be a way to ease these conversations.

What I absolutely love about OOH midwifery and supporters is that we are trying to be the change. I challenge us to also be the change on the issue of holding space for loss families or families who have questions about the care they received. It feels very vulnerable, yes — but Brene Brown style, we must be courageous enough to face and embrace these families, because they sure don’t get a choice about facing what happened to them every day. I don’t want to oversimplify, because these issues are not easy, but loss families are not always looking to demonize home birth or sue. Just like families traumatized in the hospital, they want to be seen. They have questions. They need to process their grief. They want someone to validate what they went through without gaslighting them or diminishing their pain. They need to explore whether mistakes were made — this is a natural part of grieving that will not always evolve into blame. Midwives and the birth community can take these questions on with grace and humility. I know it.

For those in the birth community in contact with other parents facing OOH loss, it is not a betrayal to a deeply held commitment to OOH birth or midwifery to show loss families that you are not afraid of their story and want to hear what they have to say. Yes, it can be very uncomfortable, but what would it look like if home birth loss families could expect the OOH community to band together to support them? I think so much positive could come from that. To those who fear that making themselves available to loss families is like taking sides, which we are naturally afraid to do when we don’t have all the facts, I say that this is not a zero sum game. We can support OOH midwives and acknowledge that sometimes, loss happens, while also holding space for loss families and also acknowledging that poor practices exist, too. Just like we say about safety and the birthing person’s autonomy: these things are not mutually exclusive. We don’t have to choose one or the other. How would you wish to be treated if God forbid, the worst happened to you, and not only that, but everyone turned on you and blamed you?

I believe if we support OOH birth, we should welcome these opportunities for growth. Because these issues are complex and nuanced, I certainly don’t know all the answers, but I look forward to continuing this conversation with you all. Please share your thoughts with me. Especially my midwife friends: What has your training been in talking with loss families? What resources do you wish you had? How can we support you in feeling supported too, in the event of a loss? What do you think the midwifery community needs around this issue?

 

We welcome your constructive thoughts in the comment section below.

The post A Call to Advocates: Compassion and Loss in Out-of-Hospital Birth appeared first on Birth Monopoly.

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